Intermountain Area • Utah • Idaho
The CF Parents' Advisory Council connects and empowers families affected by Cystic Fibrosis in partnership with the Primary Children's CF Center.
We are a collaborative partnership for pediatric families affected by Cystic Fibrosis and the Primary Children's CF Center — working together to improve the lives of all those living with CF.
What We Do
The PAC runs year-round programs to support CF families and improve the care experience at Primary Children's.
Quarterly events bringing CF families together for connection, education, and community — in person and virtually.
Regional gatherings for families in Idaho and Southern Utah to build local support networks.
Newborn kits for newly diagnosed families and inpatient gifts to bring comfort during hospital stays.
Annual holiday program coordinating gift giving for CF families in need during the holiday season.
Partnering with the CF clinic team to improve patient experience in both inpatient and outpatient settings.
Collaborating with the UT/ID CF Foundation chapter to support local events like Great Strides and Cycle to the Sea.